This is a growing list of patient support groups on Facebook for sarcoma and other rare tumors. Dr. Jerad Gardner, a skin and soft tissue sarcoma pathologist with interest in social media, created this list and maintains it.
Aggressive Angiomyxoma Support Group:[]
Alveolar Soft Part Sarcoma (ASPS) Support Group:[]
- https://www.facebook.com/groups/ASPSSupportGroup/
- http://www.cureasps.org/forum/ (not a Facebook group, but active and useful ASPS forum)
Angiosarcoma Support Group:[]
Chondrosarcoma Support Group:[]
Dermatofibrosarcoma Protuberans (DFSP) Support Group:[]
- https://www.facebook.com/groups/dfspsupport
- https://www.facebook.com/groups/743419279047310
- https://www.facebook.com/groups/26592523481
Desmoid Tumor (Aggressive Fibromatosis) Support Group:[]
Epithelioid Sarcoma (ES) Support Group:[]
Epithelioid Hemangioendothelioma (EHE) Support Group:[]
Epithelioid Sarcoma-like (Pseudomyogenic) Hemangioendothelioma Support Group:[]
- https://www.facebook.com/groups/1582069955393293/
- https://www.facebook.com/groups/epithelioidsarcomalikehemangioendothelioma/
Ewing Sarcoma (Ewing / PNET) Support Group[]
Familial Adenomatous Polyposis (FAP, Gardner Syndrome) Support Group[]
- https://www.facebook.com/groups/5795467663
- https://www.facebook.com/groups/GarderSyndromeAwarenessANDSupportGroup/
Leiomyosarcoma Support Group[]
- https://www.facebook.com/NationalLMSFoundation
- https://www.facebook.com/groups/lmsdr
- National Leiomyosarcoma Foundation (NLMSF) https://nlmsf.org / https://leiomyosarcoma.info / https://nlmsflifechange.com Contact: annieachee@aol.com or 303 808-3437